I call ADHD the “Things Could Be Worse” Disorder. I have a son who is smart, and sweet, and loving. He isn’t lost in a dark hole like some Autistic kids can be. And thank heavens he doesn’t have any major physical afflictions or life-threatening diseases. Things could definitely be much, much worse.
But. They could also be better.
Day in and day out, life is a fight. A fight to get him to focus and complete tasks. A fight to get him to stay calm and minimize extreme emotional outbursts. A fight to get him to interact with other kids in a normal, healthy way. And this is only at home. At school—well, let’s just say that I have the upmost love and respect for teachers who are working with my son. I send him off on the bus each morning with a prayer in my heart that he has a good day. A day free of an emotional meltdown is like a burst of pure sunshine in my heart.
When you have an ADHD kid, you have your teacher’s number on speed dial. You know her email address by heart. You are familiar with terms like 504 and IEP. You get daily feedback on how his day was, and many, many afternoons spent with him being grounded afterschool. You have a child who hates going to school, and has a special desk in the back to go when he just can’t focus or sit still. Which…happens a lot.
When you have an ADHD kid, you can’t just drop him off for birthday parties. Mason is “that kid.” The one that is different. He wants friends (and has a few), but the other kids can tell that he just acts—different. One of his kindergarten teachers (yes, we had a couple) told me that it was good to have Mason in her class “so the other children can learn to interact with kids that are special.” Uh, thanks?
It breaks my heart. I just dread the day when he notices it too.
As with most kids, Mason’s issues can’t be nice and neatly packaged in the “ADHD” category. He also has Sensory Processing Disorder and falls a little on the Autistic scale as far as emotional and social issues. But like kids with Aspergers, people don’t understand why he acts the way he does. ADHD has been so overdiagnosed that it is now more of a punchline; not a real disorder to be taken seriously. Even after explaining the situation to people, they just don't seem to get it. (I mean, there's a pill for that, right?) Most assume he is just a “bad kid” or, much more likely, that we are just “bad parents.” I can’t tell you how often we have been told (especially when he was younger) that all we needed to do to “fix” him was read this book or implement this parenting style. If only.
By all other accounts, he seems like a normal kid. He is very smart and very articulate. He has an imagination that is magical. He is like the MacGyver of children—he can make remarkable toys out of a paperclip, some tape, and a cardboard box. He loves superheroes and playing on the computer. His “good” days are awesome! Unfortunately, days without a screaming session in his room are very few and far between. And it’s not like he wants to be the kid who is in trouble all the time. He really does try. I can see him physically restraining himself sometimes from acting out. It is just so hard for him.
As for getting him help, the question isn’t what have we tried, but rather what haven’t we tried. We have been going to a developmental pediatrician since he was three years old. We have done occupational therapy, behavioral therapy with a psychologist, met with a child psychiatrist, and had him tested by the school district. I have spent literally HOURS researching on the internet. Mason has terrible allergies and there is a link between allergies and ADHD, so we have regular visits with an allergist. I recently read a great book (
Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies) that links food allergies specifically to behavior. So we started him on the gluten free/casein free diet (no milk or wheat). We also had him tested and found that he is allergic to wheat, soy, eggs, and all nuts. Great. That took out about 90% of his regular diet (not to mention it costs a fortune to implement), but we are doing it and waiting to see if it helps. We have him on Omega-3 supplements, DMEA supplements, iron and magnesium supplements. And, yes, we have even tried a round of ADHD drugs, which didn’t seem to help enough to justify the side effects.
It is all just about as exhausting as it sounds. But that is what you do when you are a parent. It’s part of your job. And if love could heal, there wouldn’t be a sick child on the face of this planet, let alone Mason.
At the end of the day, I do feel incredibly hopeful. Mason is a great kid. He has just been given a set of challenges that go a bit above the norm. But I know he is going to be okay. The good news is that many ADHD kids vastly improve as they get older. In the meantime, you keep searching to find ways to help him help himself. You don’t stop trying and you don’t give up. You remind him everyday how wonderful and special he is and how much you love him—just the way he is.